Dancing in Cornmeal

Life With Autism

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Lauren's DAN! Journal



June 13, 2002 

All of Lauren?s lab results are in, and Dr. N. has analyzed them. Today?s meeting is a telephone consultation, because we live many miles from the doctor.

Lauren?s lab results show that her immune system looks pretty good, so we are not going to even talk about intravenous immunoglobulin treatment, which is a very expensive option that has significantly helped some people with autism. Lauren?s digestive tract does not look so good, however. She has high levels of clostridia, Candida and staph bacteria. Clostridia and Candida are bacteria that are present in a healthy digestive tract and are important to digestion. Lauren?s levels, however, are too high, which prevents proper digestion and can cause illness. (Clostridia is the bacteria responsible for food poisoning known as botulism.) Staph bacteria is a body invader that does not belong at all. Staph bacteria causes many types of infections well known by other names, such as boils, styes, carbuncles, conjunctivitis, kidney infections, toxic shock syndrome, food poisoning and pneumonia. Staph always needs to go!

We have long been treating Lauren?s yeast problem (Candida), and she is currently taking a probiotic daily. Dr. N. tells us to double her dosage and to add a second pro-biotic, which contains a different strain of flora that specifically attacks clostridia. He also puts her on Lauricidin, which also attacks bacteria, particularly staph.

Dr. N. puts Lauren on Vitamin B2 (riboflavin), which gluten-free diets are often deficient in, as well as Coenzyme Q10, a very strong antioxidant which boosts the immune system and helps heal GI tract problems.

Dr. N. wants Lauren to do a trial of B12 for 4 weeks, then a trial with carnosine for 8 weeks. Both have shown significance in studies of children with autism. We won?t do them at the same time, so we will know to what we can attribute any changes in Lauren. The B12 we will have to administer to Lauren in a shot! (The carnosine will be in a capsule that we can mix with juice.)

We are not yet discussing one of Lauren?s lab workups?her ION profile. This was her most expensive test and will give us a very detailed picture of her nutritional needs. A 1? hour phone appointment is scheduled for this meeting.

Dr. N. explains that for future appointments we will fax him information about how Lauren is doing before the appointment, so he is ready for us when we speak. In the packet previously mailed to us, he had sent a "General Follow-up Review Form," a "Supplement Review Form" and a form which measures Lauren?s change in symptoms.

Craig and I hang up from this phone appointment knowing that B12 shots will arrive in the mail, and that we need to order 5 new oral supplements to add to Lauren?s daily regimen, which will bring the total of daily supplements to 7, given 12 times a day. But the demands of the supplement program doesn?t scare us. The administering of a shot scares us!

A thick packet comes from Dr. N. a few days later, with an invoice and notes from our meeting, more copies of the forms we are to use to fax to him and information about carnosine.